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Working with Communities
Ethics and Community-Engaged Research
A very good set of Power Point slides and notes from the Duke Translational Medical Institute that talks about some of the main ethical issues when doing community health research.
In IPROs that involve collaboration between IIT students and community organizations, ethical issues can often arise. Resolving these ethical issues can be especially important when a project involves working with underserved populations (such as individuals living in poor communities or developing nations), or vulnerable populations (such as children, or individuals with intellectual or developmental disabilities).
Exploring Community-Based Research Ethics Case Study: Healthy Public Housing Initiative
This is a very readable paper that first briefly discusses some of the ethical issues that can arise when working with underprivileged communities, and finally looks at a successful public housing project where researchers from Tufts University worked with social workers and community members to produce meaningful results that had a lasting positive impact on the community.
Ethics and Research in the Community
This is a web tutorial developed by Bryn Mawr College and the Massachusetts College of Pharmacy and Health Sciences that looks at ethical issues that often arise for researchers working within communities, and gives some guidelines for addressing these issues. The tutorial discusses recruiting participants, issues of confidentiality, and professionalism.
Canadian Community Research Ethics Office
This page includes a number of guides, sample informed consent letters, and other resources for individuals involved in community research. CREDO is a Canadian organization that supports community research practice locally and internationally.
Ethics in Community-Based Participatory Research
An incredible resource on the ethics of community research and community projects. Includes a number of case studies in the "Resources" section.
Books, Anthologies, and Other Materials
Example Case Studies
These case studies explore some ethical issues that can arise when working with communities and underprivileged populations, including issues of informed consent and the ability of community members to refuse to participate with all or parts of a study.
Informed Consent and the Collection of Biological Samples From Indigenous Populations
A medical geneticist accompanies an anthropologist to a remote area of New Zealand to collect blood samples from an indigenous population which displays unusual immunities. Upon arrival the tribal council decides not to proceed with the blood samples. The results in conflict between the anthropologist and the medical geneticist.
A Plow For Mexican Peasant Farmers
Summary of a hypothetical case study about a project to design a better plow for farmers in Mexico that asks engineers to consider the values at issue their work and the social ramifications of technology.